I took Goldie for her 2 year check-up with her pediatrician this week. I have to start by saying how much I love the group I take my girls to. I've been taking my kids there for the last 7 years. Prior to that we tried 3 different practices. Some people think I'm crazy for driving almost a half hour when there is a pediatrician less than 2 miles from my house. Who happens to be a good doctor, she just wasn't very good at telling me, the mom, what was going on. I've never been good at just blindly following directions. I finally got to the point where I decided it was worth the drive to find a doctor I could trust with my child's life. In the last 7 years the girl's dr has added two more doctors to his practice. They are both just as wonderful as him. I am amazed at their thoroughness, they don't miss a thing! But the best part, is they trust me as a mom. If I tell them I think my daughter is sensitive to dairy, they believe me. They've never been dismissive and are always open minded. Another thing I love is how calm and relaxed they are with my children. When I found out Goldie had Down syndrome I was so relieved that we had a good pediatrician already.
So, I asked about Goldie's platelets and was told it was probably a side effect of the anemia and her numbers are no where near what they consider high. I got a scrip for her 2 year labs. A couple of my readers pointed out that I may want to have her zinc levels checked. I'm going to look into that and may stop at the ped and have them add it on. Goldie has an appointment at the DS Clinic in May, so I'll be getting her blood drawn sometime between now and then. I drive 1/2 an hour to the satellite of Children's Hospital because they are the only people I trust to stick my baby.
I also got a scrip for Goldie's Sure Steps and a referral to an ENT. Her left ear needs cleaned and the pediatrician wants it double checked for fluid. I had her hearing checked in December and the results were normal. But, I was sitting in the booth with her and she did not respond to all the sounds on her left side.
Next on the list is that she can't seem to sleep for more than 1-2 hours, so I'd like to see what the ENT thinks of that. She doesn't sound like she has sleep apnea, but I need to rule it out so I can figure out what's going on. Another possibility is that because of her low vision, she's not getting enough light in through her eyes to properly regulate her sleep cycle.
No shots, we vaccinate selectively, so she is current on the ones that we get.
I just realized I forgot to ask about something, mostly because its become our normal. When Goldie wakes up she is very floppy. It almost looks like she's drunk. We can't let her walk and if she is sitting she will repeatedly fall over. It freaks my mom out, but I thought it was caused by her low tone. Right?
And because I feel like posting a picture, here's how my kids sort laundry. Where's Goldie?
This is her after waking up from a nap. She fell forward and went back to sleep.