Goldie was folding laundry today and came across a dress with little hearts all over it. One of the girls at Children's Hour has the same dress and wore it on Wednesday for the Valentine's Party. Goldie wore a different dress, but I still pointed out what her friend had on.
Sooo, I asked Goldie, "Who has the same dress and wore it to Children's Hour?"
Goldie replied, "Sydney, Sydney!"
Heck yeah! I always wonder how much she can remember. It's sooo hard to tell when a child has a speech delay and isn't able talk about their day and events like a typical child. So nice to have a little peak as to what she is taking in.
I've learned that you can't literally live on love, but you can certainly live for it. There is a lot of love in our home with 1 mom, 4 kids, 2 cats and 1 extra chromosome.
Monday, February 21, 2011
Sunday, February 20, 2011
Down Syndrome Research Plan
DownSyndrome Achieves has recently held two web conferences on the abandonment of DS research. Now there's a title that gets your attention! I wasn't able to fully view either one, but the bottom line is that DS research is grossly underfunded and their is a huge disparity between the amount of funding that goes to fund Down syndrome research versus other conditions. You can sign up for more information at http://dsachieves.org/ .
I also found the National Institutes of Health Research Plan on Down Syndrome. It is an eighty page downloadable pdf. I have it downloaded to iBooks on my iPad for reading while Goldie is at therapy. Remember, information is power!
I also found the National Institutes of Health Research Plan on Down Syndrome. It is an eighty page downloadable pdf. I have it downloaded to iBooks on my iPad for reading while Goldie is at therapy. Remember, information is power!
Saturday, February 12, 2011
Research Study - Feeding Infants with Down Syndrome
Here is a link to a survey For biological mothers of children with Down syndrome. It doesn't take long to complete and is a great way to use your experience to further research for babies with Down syndrome.
http://www.mdsc.org/index.php?option=com_content&task=view&id=424&Itemid=39
http://www.mdsc.org/index.php?option=com_content&task=view&id=424&Itemid=39
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