Maybe it's the pregnancy (all ready?) but I'm beat from chasing Goldie around by the end of the day. Well, actually by lunch. I've been questioning whether she still needs PT. I know there are things she still has to do, like running and jumping. I have the book Gross Motor Skills in Children with Down Syndrome and spent some time this week looking over the checklists. Out of the 45 motor milestones there are only 9 left for us to work on. We also continue to help her build up endurance and strength.
Hank and I talked about it and we really feel that we can handle these last 9 on our own. It helps that Goldie is such a physically motivated girl. She also has 2 sisters that keep her moving, a swing set, riding toys, and the country side at her disposal. PT has been one of the easiest things for us to do as a family on a consistent basis. Just this week she mastered climbing the ladder to the slide all by herself. I'm so proud and scared all at once! At first she would only do it once. Now, she does it over and over. I love to see how strong she is getting.
Now, how do I tell the PT? She's been coming for 2 years and when we dropped from every week to 2x a month I could tell she was disappointed. My eyes got all wet just talking about it. Hank said I'm just being an emotional pregnant woman. The PT was here yesterday and I couldn't bring it up.
I've really grown to like her. We chat about our families and she is great at showing me how to help Goldie. But, yesterday she said something that's been bugging me. She asked me about Goldie's swallow study and if she was drinking any more. I told her how that was going and went on to tell her about taking Goldie swimming. Goldie has never really enjoyed swimming. She usually hangs on my neck, then I pry her off of me into a floatation device and try to keep her moving and happy. I realized this week that what she hates is the water going in her mouth (she chokes and gags). If I hold up the front of her floaty or if she holds herself up she is much happier. I think this is also why she doesn't like me rinsing her hair during her bath. Getting back on track now, I tell all this to the PT. Her response, " I don't know. Are they smart enough to make that connection? Really, are they smart enough to know what will happen when they get in a pool?" My response, absolute silence. Did she mean any 2 year old or does "they" mean kids with DS? I have a 2 yo niece and I don't think anyone would question if she could make that connection. Am I being overly sensitive?
After that conversation I'm not as sad about letting her go. While I like her, she has never set very high expectations for Goldie. She was always a little skeptical when I told her Goldie had learned something new. I had to add walking to her IFSP last year.
And since I finally got the camera back from my husband, here is a picture of Goldie smelling a flower "with her nose, not her hands."